PatientsLikeMe

The world’s largest personalized health network that helps people find new options for treatments, connect with others & take action to improve their outcomes.

PatientsLikeMe

160 Second Street
Cambridge, MA 02142

Company Overview

PatientsLikeMe, the world’s largest personalized health network, helps people find new options for treatments, connect with others, and take action to improve their outcomes. The company has worked with every major pharmaceutical company and a range of government organizations to bring the patient voice to research, development and public policy. With 500,000 members, PatientsLikeMe is a trusted source for real-world disease information and a clinically robust resource that has published more than 100 research studies.

PatientsLikeMe is now a central part of iCarbonX's Digital Life Alliance, which is working to combine biological and patient-generated data with artificial intelligence technology to more rapidly detect meaningful signals about health, disease and aging, deliver a personalized guide for living a healthy life, and help industry learn even more about how to improve outcomes, and lives.

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Lots of companies say they're mission-driven, but at PatientsLikeMe, it's in our DNA

The work we do is challenging, rewarding, always evolving, and often complicated. But it's never boring. This is your chance to join a close-knit gang of smart, passionate people who are as excited as ever about changing the future of healthcare. And we're growing like crazy. Join us and we'll make that future together.

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Our story

Inspired by their brother Stephen's journey with ALS, Ben and Jamie Heywood, along with their longtime friend Jeff Cole, created PatientsLikeMe as a health data-sharing platform.

Our innovative technology helps patients improve their outcomes by connecting with and learning from thousands of others just like them. In the process, they donate what we call data for good. That's real-world information that helps healthcare companies create better healthcare products and services based on real patients' needs.

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Our work helps 500,000+ patients with 2700+ conditions live better, together

We're transforming how patients manage their own condition...

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Garth, living with cancer

"It certainly doesn't help me to keep my symptoms or my side effects secret. I feel that I owe other patients my experience. If I donate my data, if I share with an organization that can put it together and see a pattern... I'm helping all of the patients."

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Letitia, living with epilepsy

"I've made it my passion to share my story and resources with others who are suffering and/or know someone who is suffering from uncontrollable seizures and epilepsy."

…and changing the way the industry conducts research and improves patient care

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The lithium study

In a groundbreaking study spearheaded by ALS patients, we analyzed the effects of lithium carbonate on ALS. Our findings refuted the results of a major clinical trial — an unexpected and unmatched moment in the world of medicine.

Food and Drug Administration

Collaboration with the FDA

In 2015, we began a partnership with the FDA to explore how patient-reported data can lead to new insights about drug safety. For the first time, the FDA is analyzing patient-generated health data to understand the real-world impact of taking medications over time, and to potentially identify benefits and risks earlier.

 

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Elevating the patient voice at TEDMED

As PatientsLikeMe's Vice President for Advocacy, Policy and Patient Safety, Sally Okun brings the patient voice to health policy discussions at the national and global level. The first nurse to grace the TED stage, Sally spoke at TEDMED about the need to bridge the gap between the patients' lexicon and the overcomplicated language of the healthcare industry.

 
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We're on a mission, but we have fun, too

PatientsLikeMe takes culture — and coffee — seriously. From our annual Tough Mudder team to our coffee machine with 36 ways to get caffeinated (we counted), you could say we're an energetic bunch. And we stay fueled creatively, too, with endless opportunities to keep learning beyond our everyday jobs.

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Journal Club brings everyone together on Fridays for an informal presentation from a guest speaker — we've had everyone from Harvard PhDs to a four-star general.

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Office hangouts - It's not unusual to want to stick around past 5 PM — karaoke night, happy hours, and a sweet smorgasbord for PI Day are just a few reasons.

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Volunteering opportunities - Sometimes — like helping out at Rosie's Place women's shelter — we take it outside the office for a good cause (and a good time).

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Our visionary leaders drive us closer to a future of better healthcare

At PatientsLikeMe, it takes unique skills, experience, and passion to meet the challenges of our mission — which is why we've got some of the best and brightest at the helm. Below, meet a few of the industry experts you'll get to work alongside.

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Jamie Heywood
Co-Founder and Chairman

"Our medical system could be better in so many ways and over the last decade my passion has been to find ways to both improve the way treatments are developed for disease and the way patients receive medical care."

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Monique Levy
Senior VP, Head of Customer Strategy and Value Delivery

"I'm passionate about reducing randomness in care — especially when it comes to how decisions are made and how we take care of ourselves — by listening to patients and using the right technology."

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Paul Wicks
VP of Innovation

"I think what's really exciting is the scale we're operating under... [It's] unparalleled in power in the research world and that is what gets me up every morning."

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Kim Goodwin
VP, Product & User Experience

"There are some questions we all have as patients that our doctors can't answer: What's it really like to live with this condition? How can I have good relationships, stay productive, or manage the costs of all this? I'm excited about helping patients answer those questions for each other."

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We offer the best benefits in the heart of Cambridge's biotech center

Happy employees, prime location. Discover the sweet spot of working environments (you'll love the third-floor patio, too.)

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Generous benefits

Competitive salary, stock options, medical & dental, retirement, 20 days paid time off, 10 paid holidays, a great work-life balance, and more!

Map

160 Second Street, Cambridge, MA

Located in Boston's life sciences hub, our office is easily accessible from both the Green and Red MBTA lines.

Video

Photos

Products

Blog

February 21, 2018
Over the years, PatientsLikeMe members living with Parkinson’s disease have discussed a lot of products and ideas for living better with PD. From kitchen knives and eating utensils to shoe horns and shoelaces, we’ve compiled a list of tools you’ve talked about for (almost) every room in the house and many different aspects of life. […] The post What products help people live better with Parkinson’s disease? A room-by-room round-up appeared first on PatientsLikeMe. ...
February 14, 2018
Wheelchairs aren’t always built with the best patient experience in mind. But many PatientsLikeMe members are sharing about the creative hacks and useful accessories they’ve used to make their wheelchairs better suit their needs. Here are some suggestions — how many have you tried? Making it more comfortable: Egg crate cushions ROHO cushion (or on Amazon) Jay […] The post 10+ ways to make your wheelchair work better for you appeared first on PatientsLikeMe. ...
February 9, 2018
From managing incontinence to temperature changes and sudden muscle weakness, many people living with MS have items they can’t live without. Some PatientsLikeMe members have started carrying an emergency bag with all the essentials to deal with inconvenient MS curveballs. Check out their suggestions: Instant ice packs Mint gum (helps one member “cool down”) Change […] The post Putting together an MS emergency bag: What’s on your must-have list? appeared first on Pat...
February 7, 2018
Have you noticed changes on PatientsLikeMe in the past year? (We’re guessing you’ve spotted quite a few.) Did you know that we involve members in testing out various features or updates to the site before rolling them out? We do! Member Barbara’s user research session with Kris Engdahl, principal user researcher (left), and Nicole Barron, […] The post Behind the scenes at PatientsLikeMe! Take a peek at user research (aka usability testing) appeared first on PatientsLikeMe...
January 31, 2018
Bright light therapy is a treatment that’s become increasingly common for treating seasonal affective disorder, a condition that impacts many during the winter months. We sat down with our in-house research specialist to discuss light therapy – what it is, how it works and if it can help treat other types of depression in addition to […] The post Light therapy for depression: What is it, and how does it work? appeared first on PatientsLikeMe. ...

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Posted on: January 6, 2017